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Current Music:nothing describes the feeling of this
Current Location:home as always
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Subject:Want some friends that have fibro to talk with
Time:05:29 am
Current Mood:lonelylonely
I would love to have some people that I can talk to about fibro. I have only been diagnosed for almost four years, but feel very alone since I don't know anyone with the disease personally. Therefore, I don't have anyone that actually understands what life with this is like, except one daughter that is sympathetic, but doesn't really know what it all encompasses. So if you would like to talk to me, I would certainly appreciate it. Thanks. mssuperscribe
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Time:02:37 am
Has anyone here had a hypogastric plexus block? One with Kenalog? If you have, please respond here with details/experience. I want the good, the bad, and the ugly.

Thanks



x-posted like mad
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Time:04:16 pm
searching for a new rheumatologist in georiga. i've already seen dr. morley in savannah (who was good, but is terrible at scheduling) and dr. lynn in macon. so anyone have any positive experiences with doctors who are treating your fibromyalgia? note: i likely have chronic fatigue and sjogrens..plus the heavens only know what else at work on my body, but it's been years since i've been regularly seen by a doctor who's knowledgable in autoimmune conditions. any advice would be greatly appreciated.

xposting in the hopes of getting as much feedback as possible, but i'm reaching the "so miserable i can't take it anymore" stage.
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Time:09:14 am
So today I woke up and my intestines ( Small and Large ), mainly the small feels like someone came into my room and repeatedly beat my torso with a rolling pin.

this hasn't happened in a while.  I'm thinking that it's just ibs related.  has anyone else had this kind of thing happen??
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Time:11:51 am
My name is Alicia.
I'm 22 years old and Ive had IBS since I was 19 along with a slew of other issues.  Lately it seems that the ibs gets worse when I ingest something that has Gluten in it.  At my next doctors appt. i'm going to see if they can test for Celia Disease.
Starting yesterday my mother decided to get me moving in some exercise.  She is in remission from Accute Myloid Leukemia and signed and registered us up for the Charlottesville Women's 4 Miler race for Breast Cancer.  Training started yesterday and it went really well.  I'm very much looking forward to the race on 9/2.

Today hasn't been bad, there of course have been worse day's.  I may go and do some walking along parts of the Rivanna Trail today.  We'll have to see I suppose.

I hope every one of you out there is having an okay day!!

this will be x-posted to a couple of communities, I hope no one minds
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Current Location:home as always
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Time:01:58 pm
Current Mood:crappycrappy
tire, can't wake up another day of going straight for the pain meds just so i can move and live. every f----g day is the same now. it used to be i could at least work and struggle thru the day. now i don't even have that. i have no friends the fibro chased them all off. no one wants to be around a self-pitying person who can't go have fun anymore and do the things they enjoy. the phone doesn't even ring anymore unless it's a bill collecer or one of my kids. i get really lonely and i'm really tired of being in pain all the time. now i have to go thru the whole ssdi process, paperwork when i can barely hold a pen most of the time. my oldest daughter is about to have another baby and i'm trying to focus on that and now my youngest daughter has her senior prom coming soon. just want them to be happy then i guess my life has paid off some. i've worked so hard all my life as a single mom thinking of only them. now i have to go thru all of this stuff on my own. i paid into ss all of my life, i've never asked for anything and now i have to feel like a flippin beggar. the only person who still keeps on trying to be a part of my life has no understanding about fibro, doesn't want to. and i've been trying to ease away from him, his gambling problems, an his me,me,me life. i have no other family no one. i used to be the go-to girl for fun and advice but guess what, the phone's not ringing anymore. no one wants to be around pain and whining and why should they? they have an actual life. any takers out there?
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Subject:forever in pain
Time:04:00 pm
Current Mood:distresseddistressed
fibro sucks. chronic fatigue sucks, pain sucks. i'm tired of it and i'm tired of feeling alone. is there anybody out there to talk to?
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Subject:New Multiple Sclerosis Community
Time:08:00 pm
Please, join me in a new MS Research Community

http://community.livejournal.com/ms_research/
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Subject:Newbie
Time:09:42 pm
Current Mood:blahblah
Hey, My name is Nat and I'm a 22 year old single mother of a beautiful one year old boy.

I was born with Klippel-Trenaunay-Weber Syndrome. It's thought to be caused by a DNA mutation, although scientist still don't totally understand the disorder or why it occurs. It's very rare too, about 900 people in the world have had it. Anyway... in my case it affects my left arm, shoulder, back and chest and my arm is quite deformed and agonizingly painful. Also my spine is deformed and causes me daily pain.

I also have Fibromyalgia which I inherited from my Mom's family (damn them! lol) I started to notice it when I first started my period in my teens and it got much, much worse after I became pregnant with my son.

I'm looking forward to meeting some new people and sharing stories. If you want to know anything else, just ask me. I'm a very open person!

Really big, really bad photo behind the cut.

Read more...Collapse )
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Subject:Chronic Pain Relief Blog
Time:02:21 pm
Hey all,
I wanted to let folks know about my new blog. I have a variety of chronic pain conditions including Fibromyalgia, sciatica, RSI, TMJ... OK, I won't list them all cause that's just depressing. Anyway, I've started a Blog that's about specific ways of coping with chronic pain - I'll be posting product reviews, research articles, relaxation methods, and my own sarcastic commentary. Basically just about real-world pain management for when the pharmaceuticals alone just aren't cutting it. Realistic, but with a positive, proactive spin.

You can find it at:

http://painrelief.typepad.com/

It's brand new. Stop by, and say hello. If you have a blog you'd like me to link to, let me know (especially if it mostly deals with physical and mental health issues or pain).

There's an RSS feed available, if anyone wants to syndicate it for LJ.

Thanks :) And please let me know if this post is not appropriate for this community! I'll be glad to remove it.
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[icon] Forever In Pain
View:Recent Entries.
View:Archive.
View:Friends.
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You're looking at the latest 10 entries, after skipping 10 newer ones.
Missed some entries? Then simply jump back 10 entries or forward 10 entries